Who Are We

 ABN 84 880 604 079

Welcome to the Dwarfism Awareness Australia page.

Dwarfism Awareness Australia Inc. is a not for profit organisation and registered since 2014. We are a group of like minded individuals who all strive for the same thing. To educate Australia about dwarfism, whilst offering support to individuals and families affected with dwarfism.

Some Facts About Dwarfism:

Did you know that there is over 200 different types of dwarfism?

You cannot catch dwarfism. It cannot be passed onto someone else like a flu. It is a hereditary and non hereditary condition which can only be passed on through carriers of the mutated gene or developed spontaneously in utero by a genetic mutation of a gene.

Dwarfism refers to a group of conditions characterised by shorter than normal skeletal growth. This shortness can be manifested in the arms and legs or trunk.
Achondroplasia is the most common type of short-limb dwarfism, occurring in around one in 25,000 children in Australia with both sexes at equal risk. This type of skeletal dysplasia (abnormal skeletal growth) is usually diagnosed at birth.

The majority of children born with the disorder have average-sized parents. The child may experience delay developing motor skills, such as controlling the movements of the head, but intellectual development is normal in children with Achondroplasia. The average final height for a person with this condition is 130cm for men and 125cm for women. Short-statured people lead normal, fulfilled lives. Achieving higher levels of education and career and personal ambitions is not limited by stature.

In humans, dwarfism is sometimes defined as an adult height of less than 4 feet 10 inches (58 in; 147 cm). Dwarfism can be caused from over 200 distinct medical conditions, such that the symptoms and characteristics of individuals with dwarfism vary greatly. Disproportionate dwarfism is characterized by one or more body parts being relatively large or small in comparison to those of an average-sized adult, with growth variations in specific areas being apparent. In cases of proportionate dwarfism, the body appears normally proportioned, but is unusually small.

There is no single treatment for dwarfism. Individual differences, such as bone growth disorders, sometimes can be treated through surgery, some hormone disorders can be treated through medication, and by hormone replacement therapy; this treatment must be done before the child’s growth plates fuse. Individual accommodations, such as specialized furniture, are often used by people with dwarfism.

For people, in addition to the medical aspect of the condition, there are social and sociological aspects as well. For a person with dwarfism, heightism can lead to ridicule in childhood and discrimination in adulthood.

Hypotonia, or low muscle tone, is common in dwarfs, but intelligence and lifespan are usually normal. Defining dwarfism by height alone is problematic because short stature in itself is not a disorder. For example, pygmies have adult male heights of less than 150 cm (4 feet 11 inches) on average.

The word “midget” is considered offensive. It is considered most offensive when misused to describe those with dwarfism. Acceptable words to use are dwarf,  little person, person with dwarfism,  short stature. But most would like to be called by their name rather than their condition.

5 Responses to Who Are We

  1. Machs Colombani says:

    I am 68 and have dwarfism Achondroplasia and have experienced the ups and downs of this condition . I was born 31 October 1946 in East Melbourne both my parents were of normal height … I grew up in a time when such things as being different was often riducled and discrimanted upon through my school years and even when I began going to work .I married at 20 and my forst wife was 5’4″ and we had 2 sons one normal height and one with achondroplasia .I divorced and remarried after 4 years ..My present wife is 5’4″ and we have 3 adult sons all normal height ,I have 16 grandchildren and 2 have achondroplasia the others are of normal height … Life can be hard because of other people attitudes but the love of family and self respect helps a lot in life … Machs Colombani

  2. Brenda Morrison says:

    People can be cruel and ignorant, i am a short person as both my parents were short, my father was 5ft.3ins and my mother was 4ft so I’m unclear as to what i am but i have been told i have a form of dwarfism, it makes me cranky to hear people call me dwarf or midget as these words offend me whether or not i am or not a dwarf? I married an average size man and all my children are taller then me, 2 of them are short of around 5ft and one is well over, none of us have dis-proportioned limbs we are just short people…there are many other words that can be used to describe us like shorty… instead of using those other terms?

    • Having neen born with Achodraplasia I have lived the life of a short person in a tall persons world . I have managed to gt ahead in life and though the road is sometimes difficult It is the loved ones and friends understanding that makes it all worthwhile ! Having been married twice and having 2 sons to my first wife,who was average height,we had 12 grandchildren .The marriage broke up and we divorced.I later was married again 4 years later and have another 5 Grandchildren.Of my sons obe have achondraplasia and 3 Grandchildren have achondraplasia. I have had a full liife and no regreats .Life is what you yourself make it!

  3. Stelly says:

    I really care and really want to help them
    I want to support dewarl….💕💐❤️

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s